Trail Marker #28 Advocating for Yourself: A Guide to Navigating the Healthcare System

For many of us who have a chronic illness, the journey through the healthcare system can be complex. Navigating through doctors, medications, insurance, alternative therapies and more can be overwhelming but it is also a way to strengthen you as a patient advocate.

Over the years I have learned that my voice is valuable. I have become someone who is committed to raising awareness of my chronic illness, advocating for myself, and helping others do the same.

EDUCATE YOURSELF

The first thing I suggest that you do is become well-informed about your chronic illness. Understand the symptoms, treatment options, and potential challenges. This knowledge empowers you to make informed decisions about your health and effectively communicate with healthcare professionals. There are many journals that give you insight that often your medical team is not aware of.

SUPPORT TEAM

Please do not do this alone. Surround yourself with supportive individuals, including friends, family, and healthcare providers. Having a strong support network ensures that you have allies who can advocate for you in times of need and help you navigate the complexities of the healthcare system. Request that your doctor contact your insurance to assign you a case manager. They are often able to coordinate your care offering additional benefits the insurance will pay for.

SPEAK UP

As I mentioned, your voice is powerful. Work on developing strong communication skills. Make sure they know your needs, side effects, concerns and other questions.  Be proactive in seeking information and clarification, and don't hesitate to express your preferences regarding treatment plans. Clear and open communication creates a collaborative relationship with your medical team.

KEEP RECORDS

Maintain a detailed record of your medical history, including test results, medications, and treatment plans. Have your doctor create a patient protocal that you have on hand and all doctors are aware of. This patient protocol will give clear instructions on what is required in an emergency situation, tests that should be run, medications or antioxidants necessary for treatment. I carry this in my purse along with a detailed list of my medications, emergency contact and list of doctors. Having organized records also helps to track your progress coordinating your care between all of your healthcare providers. 

UNDERSTAND INSURANCE COVERAGE

Insurance policies can be very confusing. Take the time to understand what services are covered, co-payments and any restrictions. Be sure to call before any procedure or a medication change. Knowing your insurance details helps you avoid unexpected financial burdens and allows you to plan for medical expenses effectively.

RAISE AWARENESS

One of the ways you can receive better care is to share your journey. They will see the personal side of the chronic illness rather than just trying to remember a sentence they read in medical school. Sharing yourstore through blogs, social media, and support groups not only helps others facing similar challenges but also raises awareness about the realities of living with chronic conditions.

PARTICIPATE IN ADVOCACY GROUPS 

There are certain types of chronic illnesses that have joined together to advocate for each other. Many of them are non-profit groups focused on educating the public, influencing healthcare policies, and promoting research initiatives. One of the groups I am part of has connections with the drug companies that now many of us are able to have medical treatments paid for that would not be covered under insurance.

ORGANIZE EVENTS

Host events and workshops in your community to educate people about your chronic illness. Join a support group that will  invite guest speakers, and create a platform for open discussions. These meetings provide a more supportive environment. Each person is able to learn for the others in the group.

LOBBY FOR POLICY CHANGES

It is time for the local and national representatives to know that the health care system must improve. There are treatment options that need to be covered. The non-profit agencies often draft petitions, have contacts with the lawmakers to improve communication to advocate for our chronic illness. 

Your illness does not need to stop you from a better life. Taking steps to navigate the healthcare landscape and actively participating in advocacy initiatives, you can make a lasting impact on your own well-being and the lives of others facing similar challenges.

As a life coach, it is my purpose to help you walk through finding your voice. By joining the 12-week "Rise Above Chronic Illness' program you will have a guide to live a better life. Schedule a FREE 30-minute discovery call to learn more. www.linktr.ee/beingrestoredtojoy.com